Thursday, November 21, 2024

A DNA test revealed a family secret. What do I owe my newfound relative?

Your Mileage May Vary is an advice column offering you a new framework for thinking through your ethical dilemmas and philosophical questions. This unconventional column is based on value pluralism — the idea that each of us has multiple values that are equally valid but that often conflict with each other. Here is a Vox reader’s question, condensed and edited for clarity.

My grandmother had a teenage pregnancy she hid from her family before giving birth in secret and immediately giving the child up for adoption after birth. I accidentally discovered this after I received a message on an ancestry DNA website from someone closely related genetically to me. She told me she knew barely anything about her birth parents and was desperate to just have an answer. I accidentally exposed this secret to my mother and grandmother by asking if anyone knew who this person who messaged me was.

My grandmother was horrified, and wants nothing to do with her. How do I respect the choice my grandmother felt she had to make at that time in her life and protect her peace, while also acknowledging that this person should be able to at least know who the people who created her are and prominent family medical history? I feel guilty for exposing this secret accidentally but now I feel like I have an obligation to protect my grandmother and offer this person some peace of mind.

Dear Caught-in-the-Middle,

Your question reminded me of an idea from Bernard Williams, one of my favorite modern philosophers. He said that someone facing a moral trade-off can make what is, all things considered, the best decision, and — even though it was the right call — find that it still results in some cost that deserves acknowledgment or feels regrettable. Williams called that cost “the moral remainder.”

Regret is a trickster of an emotion. We’re used to viewing it as an indication that we’ve done something wrong. But as Williams explains, sometimes all it means is that reality has forced upon us an incredibly hard choice between two options, with no cost-free option available.

Your grandmother is not in the wrong for giving up her child all those years ago — or for wanting to keep her distance now. As you said, it’s the choice she “felt she had to make at that time in her life.” Pregnancy outside of marriage, especially in her generation, often came with a massive serving of shame, and the fact that she felt the need to hide it from her family and give birth in secret suggests this was a pretty traumatic experience.

It’s understandable if she’s scared to reopen that trauma now. She has a right to decide if and how to process it — a right to self-determination.

Have a question you want me to answer in the next Your Mileage May Vary column?

At the same time, her grown child is not wrong for wanting answers today. The desperation felt by this newfound relative of yours is the “moral remainder” of your grandmother’s decision.

As technology shifts over the generations, moral norms shift along with it. When your grandmother gave up the baby for adoption, she had no idea DNA testing would become commonplace — but it has. And as cheap testing kits like 23andMe have exposed all kinds of family secrets, more and more kids who’d been kept in the dark are making their experiences known.

Some were never bothered by their obscured origins, but discover an extra measure of joy and connection once they meet long-lost relatives. Others say they always suffered from an uneasy sense that they’re different from their siblings. Still others say it’s important to know your biological family’s medical history, especially with the advent of precision medicine.

All this has led to an increasing belief that children have a right to know where they came from — a right to self-knowledge.

Take it from Dani Shapiro, author of Inheritance, who found out as an adult that her beloved father was not her biological father. She writes:

The secret that was kept from me for 54 years had practical effects that were both staggering and dangerous: I gave incorrect medical history to doctors all my life. It’s one matter to have an awareness of a lack of knowledge — as many adoptees do — but another altogether not to know that you don’t know. When my son was an infant, he was stricken with a rare and often fatal seizure disorder. There was a possibility it was genetic. I confidently told his pediatric neurologist that there was no family history of seizures.

Some bioethicists, like Duke University’s Nita Farahany, are also building this case. Following the famous proclamation from Ancient Greece — “Know thyself!” — Farahany argues that people have a right to self-knowledge, including when it comes to medical information. She writes that “access to that essential information about ourselves is central to the self-reflection and self-knowledge we need to develop our own personalities.” It helps us shape our own lives and empowers us to make choices about our future.

That means that self-knowledge is actually a subset of self-determination — the exact same value that your grandmother is asserting. And it seems only fair for us to acknowledge that if your grandmother is entitled to that, then so is her child.

If both people have a right to self-determination, and their rights are in conflict with each other, then … well … what do you do?

Even John Stuart Mill, the 19th-century English philosopher who literally wrote the book on liberty, didn’t think that anyone’s right to liberty or self-determination is an absolute right. Instead, it’s a qualified right — the kind that we generally honor but that can be restricted to protect the interests of others.

So it feels appropriate here to strike a balance between your grandmother’s wishes and her child’s. There are a few different ways to do that, but here’s one: You could assure your grandmother that you won’t pressure her to talk to the child or hear any more about her, but you will give the child family medical information and a general understanding of her birth story, including the aspect that might feel most important to her: why she was given up for adoption.

Without mentioning your grandmother’s name or any details that would make it easy for the grown child to track her down, you could say something like, “Your birth mom is one of my relatives. She got pregnant as a teenager and didn’t have the means or support to take care of you. She made the hard choice to give you up for adoption in hopes that you’d have a better life than she could provide. She doesn’t feel comfortable being in contact now, and I feel that I need to respect her wishes and her privacy, but I hope this message brings you at least a little bit of peace.”

Ultimately, you won’t have total control over what your relative does with this information, because internet sleuthing is a force to be reckoned with. And you won’t be able to control whether she feels fully satisfied with what you tell her. That’s a feature of this kind of moral dilemma: You can’t please everyone 100 percent, but you’re doing what you can to honor the values at stake.

If you want, you might choose to meet with the grown child without involving your grandmother. Or you might decide that your notion of kinship isn’t rooted in biology and you don’t feel any particular need to bond with someone new to you.

Either way, what I love about Williams’s idea of the “moral remainder” is that it encourages you to view everyone in this tricky situation (including yourself!) compassionately. Regardless of which specific step you take next, you can move forward from that place of compassion.

Bonus: What I’m reading

  • 23andMe is floundering, to the point that the company’s CEO is now considering selling it. As Kristen V. Brown notes in the Atlantic, that would mean “the DNA of 23andMe’s 15 million customers would be up for sale, too.” It’s one of the many reasons why I’ll never spit into one of those test tubes.
  • I recently re-read the philosopher Susan Wolf’s 1982 essay “Moral Saints,” and it feels more on-point than ever. Wolf argues that you shouldn’t actually strive to be “a person whose every action is as morally good as possible” — and not just because those people are incredibly boring!
  • David Brooks is not my usual cup of tea, but I appreciated him writing in the New York Times about how, contrary to popular opinion, “emotion is central to being an effective rational person in the world.”

Related Articles

Latest Articles